Parents Improving Support, Surgery, Education, and Diligence with Hypospadias

PARENTS ARE PISSED WITH THEIR KIDS' HYPOSPADIAS SURGICAL OUTCOMES.

WE ARE HERE TO CHANGE THAT.

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THE PROBLEM

The accepted post-op complication rates are too high

Hypospadias is a relatively rare condition, and most urologists may only perform a handful of these repairs per year. Despite their good intentions, these surgeons lack the expertise required. As a result, the surgical complication rates are too high, and range from 49 - 68%.  *Source below.

Parents don't know what they are signing up for

Parents are often rushed into proceeding with surgery without an in depth understanding of the condition itself, whether treatment is indicated, what the treatment options are, which physicians are best suited to provide this care, the high probability of post op complications, and what the long term outcomes could be.


Children and adults with post-op complications are left with debilitating urologic issues that affect their physical and mental health

Families feel isolated and are not being offered adequate follow up care or support by their medical teams. 


WHO WE ARE

Parents Improving Support, Surgery, Education, and Diligence 

With HYPOSPADIAS


THE SOLUTION.


"The HEA supports the important work that PISSED.ORG is doing in protecting boys born with Hypospadias.  PISSED.ORG is giving parents a holistic approach to Hypospadias care and a thorough understanding of treatment options available to their children. Transparency of information and education will help parents decide what they feel is right for their child. "

  - Hypospadias and Epispadias Association 


“PISSED offers a vital service in raising awareness and advocating about complications related to hypospadias surgery. The education and support that PISSED provides will enable many parents of boys with hypospadias to better understand the condition as well as the risks and benefits of surgery.”



- John Filipelli

Author, Living with Hypospadias and co-host of Hypospadias Conversations podcast


"... As the father of a son who had unsuccessful surgery until we found a different urologist, I support efforts by PISSED to help them avoid the problems that we and so many other parents have experienced. Please join them to make hypospadias care better for every boy with this birth defect!"




- Executive Director

Operation Happenis

Sources

Citations:  

  1. Long, Christopher J., et al. “Intermediate-Term Followup of Proximal Hypospadias Repair Reveals High Complication Rate.” Journal of Urology, vol. 197, no. 3 Part 2, Ovid Technologies (Wolters Kluwer Health), Mar. 2017, pp. 852–58. Crossref, https://doi.org/10.1016/j.juro.2016.11.054. 
  2. McNamara, Erin R., et al. “Management of Proximal Hypospadias With 2-Stage Repair: 20-Year Experience.” Journal of Urology, vol. 194, no. 4, Ovid Technologies (Wolters Kluwer Health), Oct. 2015, pp. 1080–85. Crossref, https://doi.org/10.1016/j.juro.2015.04.105. 

  


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