Parents Improving Support, Surgery, Education, and Diligence with Hypospadias


SIGN IN SUPPORT

FIGHT FOR LAWS THAT CHANGE LIVES

IMPROVED MULTIDISCPLINARY QUALITY OF CARE

We want a multidisciplinary patient-centered approach to hypospadias care and a process of informed consent that provides families with a thorough understanding of the condition, what the treatment options are, when surgical treatment would be advised, what the possible complications are, and which physicians/teams are best suited to provide care.

We want surgical complication rates to be clearly disclosed to parents prior to any surgical intervention.

We want safe and effective surgical techniques for hypospadias repair, with lower rates of complications.

We want more urologists to be trained in effective hypospadias repair and we want the American Board of Urology and the Canadian Urology Association to designate Centers of Excellence in the treatment of hypospadias repair across the USA and Canada.

We want all children and adults who desire hypospadias repair to have access to these quality services.

WHAT WE WANT


MENTAL HEALTH SUPPORT


We want doctors to understand and to explore with families the potential mental health consequences of living with and obtaining surgery for hypospadias.

We want to provide parents with resources that help them talk to their kids about their condition.

We want to provide a private and secure network of peer to peer support groups for boys affected by hypospadias/epispadias, and support groups for parents as well, so that no one feels alone.

MORE DILIGENCE 

We want urologists to follow their patients long term, monitor their outcomes, and adjust their techniques as needed based on the latest evidence. 



  SIGN IN SUPPORT. 

PLEASE SEE OUR PETTITION BELOW TO THE BOARD OF UROLOGY.

ACCESS PETITION HERE
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